Ooooo, all of my muscles hurt like crazy, which I think is actually good news!
I think my fast twitch muscles just came back on line. I have had a stiff neck this week, without much in the way of provocation. Or no more than usual. This morning I got up to walk down stairs and my quadriceps are so stiff that I had trouble. And they hurt. Now, I have not eaten gluten, so I thought, what the heck? But my muscles feel different. Awake. Grumpy as hell, too.
So, the working theory is that I make the four PANS antibodies. My anti tubulin seems to shut down my fast twitch muscles, which makes me really short of breath at first and tachycardic. Also, dopamine makes people tachycardic, so my anti dopamine antibodies fit the lock and turn the key. Double whammy, there, tachycardic and no fast twitch muscles. OW. Heart rate initially going to 135, with 100 the normal upper limit, just from talking while sitting on the couch. Sucked the farts out of Dead Wharf Rats. I think that my anti tubulin just all finally released and my muscles are waking up. Kind of like an oppositional defiant Sleeping Beauty, "Who the hell are YOU? Did you KISS ME? WTF? GET AWAY, GUARDS, THIS ASSHOLE WAS PLANNING TO RAPE ME ASLEEP." My muscles are in that sort of mood.
The anti dopamine released in July. I woke up one day and it was just GONE. Saw B two days later and he said, "You are NORMAL." Well, normal for me. Heh. I cried the entire day after it released, because it was such a relief. Off and on. A little the second day. By the third day I was just my normal weird.
I am not sure about the anti lysoganglioside antibody. I am not going to test it yet either. That is the food one. So if I eat gluten and it's still active, all of my muscles hurt and I get the diverticulitis symptoms. I am hurting ENOUGH today. I will try some bread in a couple of weeks or January, I don't know yet. Depends how fast my fast twitch muscles cheer up. Man, are they grumpy.
We never did figure out what the lung infection was. It could have been a walking pneumonia. I contacted my doc and took high dose penicillin and clindamycin. B said they didn't help much but the antibiotics made me less terrified. I am not sure. I will wander back to my diaries eventually. Clindamycin should cover most walking pneumonias but of course won't do a damned thing for a virus. And if the lung cilia and the chest wall muscles are buggered up, it's a bit hard to tell if it's working. This time I did not get the fluid draining out sepsis symptom and my muscles and lungs did not burn as they did with both strep A x 2 and with influenza. The worrisome thing is that it could have just been a cold. Or possibly no infection at all, just the antibodies triggered by grief about saying goodbye to my patients, fear of working in a big organization, and the Covid-19 vaccines. A perfect storm. I dislike the possibility that I can get this just from the emotional crap and be taken out for 9 or more months. Ugh.
Anyhow, hoorah for my muscles coming back on line!
I am plotting to work on strength and then GO SKIING!!!!
Iron Iron Iron!